One of the priority areas for the alliance is the transition towards more person-centred care, implementation of person pathways and measuring outcomes that matter to patients.
Each of our members is committed to transform their organisational model towards a value driven model. As part of the Alliance, the leaders of these programmes and researchers come together in a dedicated multi-disciplinary working group. All members of the working group play a leading role in their organisations and in the LIVE working group they share experiences, successes and challenges and will develop evidence-based recommendations for implementation. Learning from each other will stimulate and accelerate the transition across Europe.
Currently, the working group is focussing on pathway implementation and advancing outcome reporting:
Moving towards value driven health care entails important changes in institutional organisation, work flow and requires different ways of working from staff. Care is organised in condition oriented pathways and clinicians work in team based approach and around the patient instead of following traditional medical disciplines. Traditionally, for example a woman suffering from breast cancer would meet professionals from the radiology clinic, oncology clinic, surgery clinic, radiotherapy clinic and the plastic surgery clinic. While they do work together the organisational structures make it difficult to provide truly integrated and person-centred care. Now, patients and their families play an active role in defining the pathways and expected outcomes. Moreover, to support shared decision making clinical outcomes and outcomes reported by the patient himself need to be discussed by the clinician and patient together. This requires new competences in terms of knowledge, soft skills and attitude from staff. To support this, the project aims to share best practices and outline the necessary conditions for implementation and training in this area.
Furthermore, to let value lead and improve care it is necessary to capture patient reported and clinical outcome, process measures, and resource use. In this project, the members work together on a number of conditions for which they will measure and benchmark clinical and patient reported outcomes. In several clinical disciplines, innovative tools to assess outcomes, including the experience perspectives of patients are being implemented in each of the member university hospitals. This project aims to establish a shared benchmarking platform to facilitate knowledge exchange and improve patient outcomes and experience.